Alice Viera

Alice Viera is a JD student at New York University School of Law. At NYU, she has been named an International Law and Human Rights Fellow and a Human Rights Scholar. She works as a Research Assistant for the Digital Welfare Project at the Center for Human Rights and Global Justice. Before law school, she received a Bachelor of Arts in English with Distinction from Stanford University. Her primary interests are human rights —particularly in relation to health, the environment, and technology–– as well as Latin American law, politics, and policy.

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Life-Saving At a High Cost: The Case for Provision of Rare Disease Treatments Being a Human Right

Life-Saving At a High Cost: The Case for Provision of Rare Disease Treatments Being a Human Right

Earlier this year, Brazilian authorities added Zolgesma, once “the world’s most expensive medical treatment to date,” to the country’s mandatory coverage list. The medication treats Spinal Muscular Atrophy, a rare genetic disorder ...